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One doctor’s social media mission to discuss vaccination with parents  

One doctor’s social media mission to discuss vaccination with parents   | #eHealthPromotion, #SaluteSocial | Scoop.it

As Romania fights a measles epidemic, Dr Mihai Craiu is using Facebook to turn the tide. His work has earned him a huge following – and 1st place in the 2018 Vaccines Today Communication Challenge’

In January 2017, Dr Mihai Craiu, a paediatrician in Bucharest, received some basic training in social media. It gave him the skills and confidence to do something he felt was sorely needed: join the online vaccine conversation to help parents understand the need for immunisation.

Romania has recorded thousands of measles cases this year and many blame the spread of misinformation online for declining vaccine uptake. 

‘Parents are using virtual media a lot – current data reveal that 74% of Romanians with a smartphone or desktop computer are going online first if they experience a health issue,’ Dr Craiu said.

‘I was concerned by the extremely low number of pro-immunization voices online. If anybody was searching online for information [in Romania] about a vaccine-related topic in 2016 or 2017 the first page they would find was full of anti-vaccination opinion. I realised that a Facebook page can reach more people than I could see in our clinic.’


That was the inspiration for his Facebook page (Spitalul Virtual de Copii) – a hub of information and a forum for conversations about vaccines and other child health topics. More than 100,000 people now follow the page and some of Dr Craiu’s videos have been viewed half a million times.

‘I spent at least three to four hours per day, but it has been a huge real-life experience,’ he said. The main challenge is responding to questions from parents – many of whom Dr Craiu believes decide to vaccinate their children after having their concerns addressed.

He said he has learned a great deal through using social media and has been sharing his experience with paediatricians, GPs and other health professionals – most recently at the 3rd Balkan Paediatric Meeting. 

Dr Craiu won first prize in this year’s Vaccines Today Communication Challenge. The contest set out to find Europe’s vaccine champions – those who actively advocate vaccination. He will present his work at the Excellent in Paediatrics conference in Prague at a roundtable event hosted by the Coalition for Life-Course Immunisation.

 

Read a full transcript of the interview below

What is the situation today in Romania regarding vaccine uptake? 

Unfortunately, it is slowly but constantly decreasing since 2010. According to the National Institute for Public Health (CNSCBT) we are now below the herd-immunity cut-off. The latest annual report shows a constant downward trend for measles-mumps-rubella vaccine uptake. Only 74.5% of children have had two doses of vaccine. So, the current epidemic could have been prevented because there have been serious warnings since May 2016.
Using three doses of DTP as a surrogate-marker for immunization, we also see a decrease, according to UNICEF data which puts the current level at 84% nationally. However, in some counties in Romania, it is as low as 50%. 

Is there widespread public concern about measles cases?

Yes, there has been constant coverage by media and official weekly reports from the CNSCBT on total number of confirmed cases and number of deaths. But the loudest voices are those of the anti-vaccine movement claiming that these numbers are incorrect and over-report measles cases and deaths.

Are you concerned by the level of anti-vaccine commentary in the media and online?

Yes, I am concerned because these rumours have grown into a structured movement with political implications. Clergy members, religious groups, artists and lawyers are joining forces.

There is a broad group of parliament members (more than 80 people) that have been able to block the Immunization Law. The Health Ministry appointed a group of experts two years ago when the first cases of measles were confirmed. I was appointed as a paediatrician, but there have been GPs, microbiologists, infectious diseases experts, epidemiologists, lawyers, and specialist representing the child-protection authorities among others.

The Immunization Law was evaluated by Health Ministry experts and then presented for a public debate. I was terrified by the verbal violence of opponents. Finally, after six hours of parallel dialogues, no basic consensus could be reached. The Senate had a relative short debate on this project and generated a positive vote. But the lower chamber of Parliament has the deciding vote. For more than a year there has been no progress.

Where does that leave the public debate?

Today there are no consequences for providing any fake-news regarding immunisation in Romania. The anti-vaccine people went so far as to distribute flyers by mail with UNICEF,WHO and Health Ministry logos stating that vaccines are harming children and are producing the measles epidemic. Dr Pintea, our Health Minister, has said that legal prosecution will follow. 

Do you also hear these concerns from parents in your clinic? How do you respond?

Parents are extremely vocal in social media, both pro and against vaccination. In the clinic most of the people that approach physicians are hesitant people. Some of them are not opponents of all vaccines. MMR uptake is still affected by the bad Wakefield story and we are still debating with many parents on autism causality issues. There are also a large group of parents who are hesitant because their GP is hesitant.

With my colleagues from the National GP Society we produced short online cases or scenarios related to vaccine-preventable diseases. We also posted, on the Society portal, a structured catch-up schedule for those children whose parents can be convinced. This portal is open also for lay people.

When did you begin using Facebook to communicate about paediatrics and vaccination?

More than four years ago we started to provide online education for parents of children with asthma through our Institute’s online portal. The Virtual Asthma Hospital has proven that people are reading these posts. And children that were instructed to use this portal were less likely to have unscheduled medical visits to the Emergency Department. We were able to present a paper at an international conference on the Virtual Asthma Hospital impact on quality of life.

Parents are using virtual media a lot. Current data reveal that 74% of Romanians with a smartphone or PC are going online first if they experience a health issue. Only 26% are asking their GP. So, I realised that a Facebook page can reach more people than I could see in our clinic.

I attended a training session in Bruxelles in January 2017. I was concerned by the extremely low number of pro-immunization voices online. If anybody was searching online for information about a vaccine-related topic in 2016 or 2017 the first page they would find was full of anti-vaccination opinion.  

There are some isolated voices of physicians like Irina Costache, mother of two and paediatrician. Her blog, Mamica Pediatru, is a nice and positive voice. Prof Maria Livia Ognean, neonatologist and one of the most active physicians on-line, has a page called Baby Care Sibiu. And Dr Otilia Tiganas, a GP in a small rural area of western part of Romania writes a blog with a simple and sometimes humorous approach to medial issues – Blogul Otiliei.

Has your social media work been a success? 

I think so – last year at the COPAC Gala my Facebook page (Spitalul Virtual de Copii) was awarded a special prize in a communication contest. It was the first time that a paediatric pro-immunization page was nominated for such a competition in Romania.

More than 97,000 people are reading this page and a lot of children have been immunized after their parents had an online pro-con debate on this page. Positive open dialogues on vaccine related-issues are common on my page. It is not entirely dedicated to vaccines but covers a rather large area of childhood diseases or health-related issues like growth and development, emergencies, diet etc.

Have you had any negative experiences?

Yes, several. But during my 20 months experience I found the right approach – I hope! Some unexpected negative experiences were related to other physicians that were not very happy – unfortunately we have some doctors in Romania that are organizing, along with religious groups or notorious anti-vaccine champions, public events where fake science is promoted.

How do you respond to anti-vaccine comments on Facebook?

If they are aggressive or deliberating misleading I warn them in a polite manner. Some fake-news are useful because I can answer in a scientific way and I am able to provide data and documentation sources for hesitant parents. A lot of hesitant people sent me private messages seeking guidance or even asking me to immunize their child.

Some vulgar or aberrant posts are deleted. But more than 90% of my Facebook followers are rather polite.

Would you encourage other health professionals to use social media in this way? 

Yes, I have presented my work at several local or regional meetings. This month I was an invited speaker at the 3rd Balkan Paediatric Meeting where I presented my online activities. Next month I will attend a national joint meeting of paediatricians, GPs and media people and I will present also a SWOT analysis of my Facebook page.

What skills or training do you need, if any?

I need better skills for video editing – short videos are the most commented posts on my Facebook page. One of them had more than 500,000 views. 

A lot of trouble-shooting issues are also needed – how to respond to a special type of approach? Tailored "treatment" in a rising rather aggressive Romanian Social Media environment is needed.

Does it take a lot of your time? 

Yes. At least 3-4 hours a day. But it has been a huge real-life experience. During a one-to-one dialogue in hospital I am rather protected. I am in a comfortable position of being a senior physician and patients are rather compliant. But online I have met the real patients. There are no limited on sincere and uncensored dialogue.

One parent has said: "If I am not in the GP’s office I can ask about my fears or dilemmas. You are listening. Or at least you cannot interrupt my questions…".

Do you believe your social media work is having an impact on public attitudes? 

Yes. Or I hope so! Many of my residents and students in medical school have changed. And our hospital is now the leading paediatric hospital in parental perspective. Because dialogue style changed. 

The future is now. Social media tools will impact more and more medical issues – not only vaccination. 


Via Plus91, Lionel Reichardt / le Pharmageek
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Il Dossier completo su "la Salute umana" 
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Sur Tik Tok, les docteurs contrent les fake news médicales

Sur Tik Tok, les docteurs contrent les fake news médicales | #eHealthPromotion, #SaluteSocial | Scoop.it
Fausses infos sur le coronavirus, les vaccins ou challenges dangereux... Aux États-Unis, mais aussi en Europe, les docteurs investissent le réseau social chouchou des ados pour contrer la désinformation en matière de santé.

Via Lionel Reichardt / le Pharmageek
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Twitter, Kardashians, and the Democratization of Clinical Debate

Twitter, Kardashians, and the Democratization of Clinical Debate | #eHealthPromotion, #SaluteSocial | Scoop.it
What should be the role of Twitter in public conversations about clinical trials and their results when both experts and crackpots can weigh in and, if they have enough followers, shape the narrative?
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Top health industry issues of 2020 | #eHealthPromotion, #SaluteSocial | Scoop.it
In its 14th year, PwC Health Research Institute’s report highlights the forces that will most powerfully affect the industry in 2020.

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Silicon Valley is obsessed with growth. And for digital health startups, that obsession is not only misguided, but dangerous.

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The global pharmaceutical industry reached unprecedented heights in 2018, being estimated at an astounding $1.11 trillion. By 2020, this figure is set to rise to $1.43 trillion. With rising pressure to develop drugs to meet ever increasing global demand, pharmaceutical companies continue to work tirelessly to bring the most innovative and cutting-edge treatments to patients.

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Johnson & Johnson teams with Apple study to help reduce the risk of strokes 

Johnson & Johnson teams with Apple study to help reduce the risk of strokes  | #eHealthPromotion, #SaluteSocial | Scoop.it

Apple and Johnson & Johnson are teaming up on a study to determine whether the latest Apple Watch, in conjunction with an app from the pharmaceutical company, can accelerate the diagnosis of a leading cause of stroke.Click here to edit the content


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Facebook, Twitter are blocking dangerous antivaccine posts. It’s about time 

Facebook, Twitter are blocking dangerous antivaccine posts. It’s about time  | #eHealthPromotion, #SaluteSocial | Scoop.it

In recent weeks, Pinterest, YouTube, Facebook, and Amazon have done something previously thought unimaginable: They’ve censored potentially dangerous health information, at last addressing a problem that started in the late 1990s.


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cinternetmarketer's curator insight, March 13, 2019 5:59 AM
 
Timothy Cappos's comment June 18, 2019 11:43 PM
This is great news! I am happy that social media platform like Facebook and Twitter have taken action to censor harmful media lately.
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ER doctor shares why social media is a powerful tool in helping him cope with death. | #eHealthPromotion, #SaluteSocial | Scoop.it

Telling someone their child has just died has to be one of the most difficult things a human can do. For an emergency room physician, it’s part of their day-to-day lives. Every day there’s a chance they’ll deliver horrifying news that will forever change someone’s life.

It’s not a responsibility to be taken lightly. But it’s understandable that an emergency room physician would become calloused after years of delivering tragic news.

The physician may also be enraged after seeing another lifeless body of a young person who died due to drugs or carelessness.

That’s why a LInkedIn blog post by Dr. Louis M. Profeta, an emergency room physician practicing in Indianapolis, is so powerful.

In the post, he reveals how he comes to understand the individual importance of every life he loses on the operating table. A life of someone he never knew that was most likely delivered to him bloody, unconscious, and on a stretcher.

He looks at their Facebook profile.

You see, I’m about to change their lives — your mom and dad, that is. In about five minutes, they will never be the same, they will never be happy again. Right now, to be honest, you’re just a nameless dead body that feels like a wet bag of newspapers that we have been pounding on, sticking IV lines and tubes and needles in, trying desperately to save you. There’s no motion, no life, nothing to tell me you once had dreams or aspirations. I owe it to them to learn just a bit about you before I go in.

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Maybe you were texting instead of watching the road, or you were drunk when you should have Ubered. Perhaps you snorted heroin or Xanax for the first time or a line of coke, tried meth or popped a Vicodin at the campus party and did a couple shots. Maybe you just rode your bike without a helmet or didn’t heed your parents’ warning when they asked you not to hang out with that “friend,” or to be more cautious when coming to a four-way stop. Maybe you just gave up.

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You’re kind of lucky that you don’t have to see it. Dad screaming your name over and over, mom pulling her hair out, curled up on the floor with her hand over her head as if she’s trying to protect herself from unseen blows.

By checking their Facebook page, it also helps quell his anger over a life lost far too early.

I check your Facebook page before I tell them you’re dead because it reminds me that I am talking about a person, someone they love—it quiets the voice in my head that is screaming at you right now shouting: “You mother fucker, how could you do this to them, to people you are supposed to love!”


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How Virtual Reality Will Transform Medicine 

How Virtual Reality Will Transform Medicine  | #eHealthPromotion, #SaluteSocial | Scoop.it
Scientific American is the essential guide to the most awe-inspiring advances in science and technology, explaining how they change our understanding of the world and shape our lives.

 

If you still think of virtual reality as the province of dystopian science fiction and geeky gamers, you had better think again. Faster than you can say “Ready Player One,” VR is starting to transform our world, and medicine may well be the first sector where the impact is profound. Behavioral neuroscientist Walter Greenleaf of Stanford University has been watching this field develop since the days when VR headsets cost $75,000 and were so heavy, he remembers counterbalancing them with a brick. Today some weigh about a pound and cost less than $200. Gaming and entertainment are driving current sales, but Greenleaf predicts that “the deepest and most significant market will be in clinical care and in improving health and wellness.”


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Professor Giuseppe Fattori speaks on the role of Social Marketing in today's global landscape

Professor Giuseppe Fattori speaks on the role of Social Marketing in today's global landscape | #eHealthPromotion, #SaluteSocial | Scoop.it

“We should be proud of Social Marketing for having promoted social good across all continents by overcoming the stigma that the word ‘Marketing’ carries with it” a strong sentiment by Giuseppe Fattori, Professor in Social Marketing at the University of Bologna.

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Amazon se lance discrètement dans la santé

Amazon se lance discrètement dans la santé | #eHealthPromotion, #SaluteSocial | Scoop.it

Le champion mondial de l’e-commerce a entamé une offensive dans la sphère médicale. Moins visible que celle de Google, sa stratégie, globale, inclut télémédecine, pharmacie et assurance.

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Doctors on TikTok Try to Go Viral - The New York Times

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They have M.D.s, but are they up for this challenge? Dr. Danielle Jones, a gynecologist at Baylor Scott and White Health in College Station, Tex., films videos for TikTok and YouTube about women’s health at home on her days off.

 

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Marketing Sociale - Iscrizioni

Il workshop intende promuovere l’approccio del marketing e della comunicazione sociale, per aumentare l’efficacia delle iniziative volte a tutelare la salute dei cittadini. Tale iniziativa intende sottolineare la centralità della comunicazione efficace nella promozione della salute e nella ricerca scientifica.

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«Alexa j'ai mal»: le service santé publique britannique fait appel à Amazon 

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«Alexa, quels sont les symptômes d'une grippe?»: le gouvernement britannique a annoncé que ses citoyens pourraient désormais s'informer auprès du service de santé public NHS par l'intermédiaire d'enceintes intelligentes produites par Amazon.

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Twitter e medicina, l’Italia resiste ma non deve avere timori - Caterina Visco - Senti chi parla 

Twitter e medicina, l’Italia resiste ma non deve avere timori - Caterina Visco - Senti chi parla  | #eHealthPromotion, #SaluteSocial | Scoop.it
Su 330 milioni di utenti/mese attivi, solo poco meno di otto milioni sono italiani. Ha dunque ragione Alberto Tozzi, Chief Innovation Officer dell’Ospedale Pediatrico Bambino Gesù di Roma, quando dice che l’Italia resiste all’uso di Twitter come social, soprattutto per quanto riguarda scienza e medicina?
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Qui sont les influenceurs en santé ?

Qui sont les influenceurs en santé ? | #eHealthPromotion, #SaluteSocial | Scoop.it

Puissance, autorité, expertise et contrôle de l’information

Pour comprendre l’originalité de la notion émergente d’influenceur, il est utile de prendre une perspective historique sur le temps long. L’Antiquité classique grecque et latine est riche de réflexions sur le pouvoir. Les Romains en particulier distinguaient auctoritas (« autorité ») et postestas (« puissance »). Alors que la seconde désigne le contrôle de l’appareil exécutif, judiciaire et militaire et correspond à l’ossature de ce que nous appelons aujourd’hui le « pouvoir », la première désigne une simple préséance, ou influence, fondée sur le mérite ou l’exceptionnalité d’un individu – celui qui parle en premier, celui que tous écoutent. Cette distinction a été reprise par l’Eglise pour distinguer le pouvoir spirituel du pouvoir temporel.
Le mérite ou l’exceptionnalité est essentiellement fondé sur la réputation ou les honneurs rendus. L’autorité se distingue donc nettement d’une autre forme de pouvoir de décision, fondée sur l’expertise, essentiellement intellectuelle. C’est la posture commune adoptée par des personnages aussi opposés que Platon (dans l’Antiquité) et Machiavel (à la Renaissance) : ils ne sont pas recommandables par leur vertu mais par leurs capacités intellectuelles.
Une quatrième forme de pouvoir est représentée par le contrôle de l’information. Bien que reconnue depuis l’Antiquité, elle est théorisée tout particulièrement à partir du XXème siècle, à partir d’une réflexion sur les formes extrêmes que constituent la propagande, l’idéologie ou le mensonge d’Etat.
C’est à une nouvelle forme de « pouvoir » que nous avons affaire avec la notion d’influence.

 


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Medtronic gets FDA green light for iPad-based pacemaker programmer

Medtronic gets FDA green light for iPad-based pacemaker programmer | #eHealthPromotion, #SaluteSocial | Scoop.it

The FDA has cleared a new device manager platform from Medtronic that allows physicians to program and download data from compatible cardiac implants using an iPad.

 

The medtech giant’s portable CareLink SmartSync system includes a patient connector and telemetry head, as well as a base station and pacing system analyzer, which all weigh just over two pounds when combined with the Apple tablet. It also uses Bluetooth to wirelessly communicate with its line of BlueSync-enabled devices.

Medtronic describes SmartSync as a next-generation programmer and pacing system that follows on from its CareLink 2090 device, which had its internet update functionality disabled by the company last year amid concerns that it might be vulnerable to cyberattacks.


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Comment réguler l’intelligence artificielle en médecine ? 

Comment réguler l’intelligence artificielle en médecine ?  | #eHealthPromotion, #SaluteSocial | Scoop.it

Aux États-Unis, la FDA a autorisé la commercialisation de 13 solutions médicales s’appuyant sur l’IA. Une seul a fait l’objet d’une étude clinique rigoureuse.Selon le docteur Jean-Emmanuel Bibault*, l’utilisation des méthodes d’intelligence artificielle sans régulation par les autorités sanitaires peut exposer la population à d’éventuelles erreurs.

 


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Les "millennials", cible prisée mais fuyante pour les marques  - Decode Media

Les "millennials", cible prisée mais fuyante pour les marques  - Decode Media | #eHealthPromotion, #SaluteSocial | Scoop.it
"De nombreuses entreprises commettent une erreur en traitant les millennials comme s'ils avaient une personnalité identique et partageaient un socle commun de valeurs», explique David Allison, expert en habitudes de consommation.

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Rescooped by Giuseppe Fattori from Social Media and Healthcare
Scoop.it!

Tweeting about quality: How social media can help improve care

Tweeting about quality: How social media can help improve care | #eHealthPromotion, #SaluteSocial | Scoop.it

Informing and connecting: If social media is supporting the development of quality care in Ontario and elsewhere, it is through effectively performing these two key tasks.

While social media may still only be used by a portion of health care providers, policy-makers and patients in the province, the platforms we have come to associate with social media – Twitter, Facebook, LinkedIn etc. – can be influential in supporting quality care initiatives.

In developing a system that we wish to be patient-centred, social media has emerged as an important platform for allowing patients and members of the public to engage with health care providers and policy-makers to make their views clear. The degree of interaction between those with lived experience with a disease or illness with those providing their care is unprecedented thanks to online communities and social media like Twitter.

The Twitter hashtag #metoomedicine, galvanized women physicians and their supporters through Twitter to demand more equity and gender equality within the medical profession and has helped bring a much higher profile to this issue. It is an example of how social media has emerged as a powerful tool for helping health care providers share their experiences and insights. It can also help providers deal with their challenges to support the fourth pillar of the Quadruple Aim in quality care – that of enhancing provider wellbeing (although to be fair, social media can also impede this by adding more time pressures to already stressed providers or exposing practitioners to frankly hostile or upsetting views or individuals).

Social media has enhanced the development of a quality care network too, connecting people provincially, nationally and globally. Leaders in the development and promotion of quality care initiatives exist in every jurisdiction, and platforms such as Twitter allow them to share their experiences and knowledge with each other and those who follow them. Examples in Ontario include Health Quality Ontario’s own Dr. Irfan Dhalla (@IrfanDhalla), Lee Fairclough (@LFairclo) and Dr. David Kaplan (@DavidKaplanMD) and family physicians such as Dr. Sarah Newbery (@snewbery1) and Dr. Cathy Faulds (@fauldsca). Elsewhere in Canada there are others too numerous to list although some such as Dr. Dennis Kendel (@DennisKendel) in Saskatchewan merit mention because of the outstanding job they do in sharing information about quality care initiatives. Globally, health quality leaders such as Helen Bevan (@helenbevan) in the UK are highly active on social media and have shared ideas that appear in health quality presentations in Canada and elsewhere.

Conferences such as Health Quality Transformation hosted by Health Quality Ontario and the upcoming BC Quality Forum (#QF19) hosted by the BC Patient Safety & Quality Council significantly expand their reach and generate much broader conversations about quality through use of Twitter and other social media channels.

For health quality organizations such as Health Quality Ontario, social media are invaluable for sharing information and engaging about initiatives and programs. Any organization or individual choosing to use social media needs to first consider how and why they are going to use certain platforms or tools.

For instance, Health Quality Ontario (@HQOntario) uses Twitter extensively to engage with its followers and others because it has found Twitter to be the most strategically useful platform to connect with work in or use the province’s health care system. We also use Facebook because many patients and members of the public rely on Facebook to keep informed and we have much that we would like to share with them and seek their opinion. Health Quality Ontario also hosts a vibrant online community about health care quality called Quorum.

It is important to remember that social media can promote and amplify bad ideas and opinions just as easily as good. “Fake news” flourishes on social media, but that is no reason to dismiss the platforms themselves.

For those choosing to embrace social media to support quality care, it is also important not to forget that your social media contacts and online communities do not mirror the real world. As we can choose who to follow on Twitter or which Facebook or LinkedIn groups to join, we often create social media worlds that are amicable to our own worldview and, unless we are careful, can forget other voices and opinions that can be just as influential. To combat this tendency, it is good to follow people or organizations on social media who have views with which you may not agree, so as to gain a broader perspective.

Writing in this space recently, the former CEO of Health Quality Ontario Dr. Joshua Tepper (@DrJoshuaTepper) said one of the seven core competencies of leadership should be familiarity with social media and an understanding of how the growth of social media platforms “is transforming traditional communications hierarchies, means of information sharing and participation.”

I would extend this argument beyond leaders to everyone who has an interest in supporting the principles of quality care and promoting agendas that see these principles more fully enshrined on our own health care system.

Pat Rich is Senior Digital Writer at Health Quality Ontario


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